PMR GCA Scotland

Support for Polymyalgia and Giant Cell Arteritis Sufferers in Scotland

AGM 2020

Best Western Queens Hotel Dundee 160 Nethergate, Dundee DD1 4DU Phone: 01382 322515 is booked for Friday 20th March 2020. Speaker is Dr Anna Ciechomska, Consultant Rheumatologist, NHS Lanarkshire. Keep the date in your diary.

Winter Newsletter

Issue 29 (Winter 2019) of NewsWire is available as a download  HERE. Paper copies were posted on Thursday 28th November. If your copy has not arrived yet, please email Secretary@pmrgcascotland.com.

PAST NEWSLETTERS

Copies of the last few newsletters are available:

2019 December Issue 29August Issue 28, April Issue 27.

2018 December Issue 26, August Issue 25, April Issue 24.

2017 December Issue 23, August Issue 22, April Issue 21.

TOCILIZUMAB latest news…

The SMC (Scottish Medical Consortium) announced on Monday 10th September 2018, their approval for the use of tocilizumab (RoActemra®) for restricted use within NHSScotland. This drug may be used in the treatment of Giant Cell Arteritis (GCA) in adult patients subject to a 12 month clinical stopping rule.

This is the first new drug for GCA since steroids were first used 70 years ago. Thousands of patients have had no option up to now but to take high doses of steroids for several years.

The relevant Detailed Advice Document can be found here and a link to the Decision Explained public information summary can be found here .

The charity’s submission to the SMC can be found here.

The charity has been thanked for the considerable time and effort taken to capture the patient and carer perspective during the submission process.  We particularly thank Lorna for all her efforts and we welcome this decision.

To see the report on the trial of Tocilizumab in Giant-Cell Arteritis issued on 27th July 2017 go to  Research and clinical guidelines.