PMR GCA Scotland
Support for Polymyalgia and Giant Cell Arteritis Sufferers in Scotland
ABERDEEN MEETING 17th October
THURSDAY 17th OCTOBER at 1:30.
The Aberdeen Group have booked the Morven Room at The Hub, Cults Kirk Centre, 404 North Deeside Road, Cults, ABERDEEN. AB15 9TD from 1.30 to 3.00 on Thursday 17 October 2019.
There is a table reserved in the cafe from 12.30. The cafe serves teas\coffee cakes etc, soup, sandwiches. etc. which are all home made.
The number 19 bus from the city to Culter will take you nearly to the door.
The Church is close to the new Aberdeen bypass …….handy for anyone coming from the North or South by car.
There will be no charge for the meeting but items from the cafe will be paid for by the diners.
Details of the room can be found at www.cultsparishchurch.co.uk then Cults Kirk Centre and Meeting Rooms.
For more details, email Aberdeen@pmrandgca.org.uk or ring 0300 777 5090 and ask for a message to be passed to one of the Trustees.
Best Western Queens Hotel Dundee 160 Nethergate, Dundee DD1 4DU Phone: 01382 322515 is booked for Friday 20th March 2020. Speaker is Dr Anna Ciechomska, Consultant Rheumatologist, NHS Lanarkshire. Keep the date in your diary.
AGM 2019Very sucessful meeting in Glasgow on 12th April 2019. Speakers were Kate Gilbert PhD author of Polymyalgia and Giant Cell Arteritis: a survival guide and Mayrine Fraser, Service Delivery Lead/ Specialist Nurse from the Royal Osteoporosis Society.
Copies of the last few newsletters are available:
TOCILIZUMAB latest news…
The SMC (Scottish Medical Consortium) announced on Monday 10th September 2018, their approval for the use of tocilizumab (RoActemra®) for restricted use within NHSScotland. This drug may be used in the treatment of Giant Cell Arteritis (GCA) in adult patients subject to a 12 month clinical stopping rule.
This is the first new drug for GCA since steroids were first used 70 years ago. Thousands of patients have had no option up to now but to take high doses of steroids for several years.
The relevant Detailed Advice Document can be found here and a link to the Decision Explained public information summary can be found here .
The charity’s submission to the SMC can be found here.
The charity has been thanked for the considerable time and effort taken to capture the patient and carer perspective during the submission process. We particularly thank Lorna for all her efforts and we welcome this decision.
To see the report on the trial of Tocilizumab in Giant-Cell Arteritis issued on 27th July 2017 go to Research and clinical guidelines.
Issue 28 (Summer 2019) of NewsWire is available as a download – see below or use link HERE. Paper copies were posted on Tuesday 13th August. If your copy has not arrived yet, please email Secretary@pmrgcascotland.com.A