Information • Support • Help
PMR-GCA Scotland
Support for Polymyalgia Rheumatica and Giant Cell Arteritis Sufferers in Scotland
Enhance your understanding of PMR & GCA
We provide support to sufferers from PMR and GCA within Scotland. We run a helpline, support groups, provide information packs and a regular newsletter to patients, families and friends.
We offer FREE membership which gives you access to the NewsWire magazine along with an invite to our annual meeting. Donations and Gift Aid are also gladly received to help keep our work and support going.
Helpline
0300 777 5090
The Helpline is open 9.00am to 9.00pm, 7 days a week. If a volunteer is not available when you ring, please leave a short message and they will return your call
Groups & Meeting Dates
General Information about Support Groups
Regular meetings are for people with PMR and/or GCA but also for family, friends or anyone else who has an interest and would like to learn more.
Meeting Locations:
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Social Prescribing Consultation
We have been asked to seek member involvement in a health-related consultation for the Scottish Government. I have largely copied the wording we were sent, but have tried to translate the worst bits of government-speak into ordinary language
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New GCA Drug is Approved
The charity has contributed significantly to an application to get a new drug treatment approved for use in NHS Scotland. I am delighted to say that this has been successful and Upadacitinib (called Rinvoq by the manufacturer) will be available as an option for treating GCA.
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GCA patient or clinician? Complete the EULAR survey
We have been asked to help with an international project aiming to develop guidelines on the
treatment of GCA. The project team is led by Christian Dejaco (Italy/Austria) and Carol Langford
(USA) and UK members are Bhaskar Dasgupta, Sarah Mackie and Rashid Luqmani. In addition, our
own Lorna Neill is the UK patient representative.”
