Support for Polymyalgia and Giant Cell Arteritis Sufferers in Scotland
From time to time the charity becomes aware of ongoing research into both the conditions and related material. We will add it here once we are confident with the source. Wherever possible we provide a link to the originating website.
If you become aware of something new, or if you notice that our links are outdated (or don’t work) please email us at Secretary@PMRGCAScotland.com and we will do our best to address the issue.
Link to NICE Guidelines for steroid reduction for PMR
A link to the NICE guidelines for steroid reduction for those suffering from PMR can be found here. This was taken from the Clinical Knowledge Summaries section of the NICE website.
2015 The full report for the management of polymyalgia rheumatica: a European League Against Rheumatism/American College of Rheumatology (EULAR-ACR) collaborative initiative can be downloaded HERE and a summary of the recommendations can be downloaded HERE
Guideline published by the British Society for Rheumatology (BSR) in 2020 for the diagnosis and treatment of Giant Cell Arteritis (GCA) available HERE.
Treating giant cell arteritis
An article taken from Hospital Health Care website written by Fiona Coath MBChB MRCP, Faidra Laskou MBBS MRCP and Bhaskar Dasgupta MBBS MD FRCP Oct 2nd 2018 can be found HERE.
Quick and Kirwin
You may have seen reference to the ‘Quick and Kirwin’ paper on various forums and websites. Please follow THIS LINK to access a copy. Of particular interest please see the PMR and GCA treatment regimes which can be found on page 344 and 346.
A clinical review of Polymyalgia Rheumatica
Webinars from PMRGCAuk
Professor Bhaskar Dasgupta (one of our patrons) delivered a webinar for our sister charity PMRGCAuk entitled “PMR and GCA: The Road beyond Covid”
This webinar outlined new ways of diagnosing, assessing and living with Polymyalgia Rheumatica and Giant Cell Arteritis: how to embrace new ways of communication, remote review, self-disease assessment and self-management in a changed world. You can watch a recording of the webinar HERE
Also from PMRGCAuk a webinar with Sara Muller, Research Fellow at Keele University, where she leads the PMR Cohort Study entitled “Study of the course of PMR Symptoms 2 years after diagnosis”. Sara describes the patterns she has found in pain and stiffness and what this might mean for future research. You can watch a recording of the webinar HERE.
Versus Arthritis (www.versusarthritis.org) was formed in 2018 following a merger of Arthritis Care and Arthritis Research UK. They publish an excellent set of booklets to assist sufferers. You can find downloaded copies here: PMR, GCA, steroids
Versus Arthritis periodically publish papers for health professionals and students under the general heading ‘Hands On’. In Spring 2014 the topic was Polymyalgia Rheumatica and is a very worthwhile read that can be found by following Hands On PMR link.
If you are having difficulty retrieving a printed version of any of these documents to take to your GP or other medical practitioner, please contact us at Secretary@PMRGCAScotland.com giving us your email address and/or postal address and we will send a copy to you.
Conclusions of trial of Tocilizumab in Giant-Cell Arteritis.
Tocilizumab, received weekly or every other week, combined with a 26-week prednisone taper was superior to either 26-week or 52-week prednisone tapering plus placebo with regard to sustained glucocorticoid-free remission in patients with giant-cell arteritis. Longer follow-up is necessary to determine the durability of remission and safety of tocilizumab.
For full report dated 27th July 2017 read HERE.
Conference: 30 Sept 2016 – Glasgow
Delightfully there was good attendance at the SSR supported conference for interested clinicians from Primary and Secondary Care – GPs, Practice Nurses, District Nurses, Rheumatology Consultants, Junior Doctors, Clinical Nurse Specialists and Allied Health Professionals etc. entitled “The diagnosis and management of GCA: New and updated guidelines”.
Professor Bhaskar Dasgupta talked about the development of best-practice treatment (you can download his presentation HERE) followed by Madeline Whitlock who took us through the nursing perspective (and her presentation HERE).
Dr Neil Basu (keynote speaker at our 2016 AGM and Annual Meeting), has provided a copy of his presentation on fatigue ‘Unravelling Vasculitis Related Fatigue’ which is attached HERE