Keep up to date with regular news items that may be of interest to you, along with notices of meetings and member’s days.
We have been asked to seek member involvement in a health-related consultation for the Scottish Government. I have largely copied the wording we were sent, but have tried to translate the worst bits of government-speak into ordinary language
The charity has contributed significantly to an application to get a new drug treatment approved for use in NHS Scotland. I am delighted to say that this has been successful and Upadacitinib (called Rinvoq by the manufacturer) will be available as an option for treating GCA.
We have been asked to help with an international project aiming to develop guidelines on the
treatment of GCA. The project team is led by Christian Dejaco (Italy/Austria) and Carol Langford
(USA) and UK members are Bhaskar Dasgupta, Sarah Mackie and Rashid Luqmani. In addition, our
own Lorna Neill is the UK patient representative.”
The last few months have been some of the busiest I can remember for the charity. Sadly, Candy Horsbrugh, who had been our director for the last five years, left to pursue new challenges. I became chair of PMRGCAuk around the time that Candy joined, and it has been a huge pleasure to work with her. She has been an enthusiastic, supportive and innovating leader of the charity, and we have seen growth and considerable development during her time with us.
The last few months have been some of the busiest I can remember for the charity. Sadly, Candy Horsbrugh, who had been our director for the last five years, left to pursue new challenges. I became chair of PMRGCAuk around the time that Candy joined, and it has been a huge pleasure to work with her. She has been an enthusiastic, supportive and innovating leader of the charity, and we have seen growth and considerable development during her time with us.
The last few months have been some of the busiest I can remember for the charity. Sadly, Candy Horsbrugh, who had been our director for the last five years, left to pursue new challenges. I became chair of PMRGCAuk around the time that Candy joined, and it has been a huge pleasure to work with her. She has been an enthusiastic, supportive and innovating leader of the charity, and we have seen growth and considerable development during her time with us.
In our last edition, I talked about how encouraging it was to see our support groups meeting face-to-face and enabling people to meet others to share their experiences, good and bad. It’s something that Richard Cuthbert, my counterpart at PMR GCA Scotland, talks about on his page.
It’s hard to believe that we are at the end of another year. For many, there is relief that the worst of the pandemic appears to be over. There are still delays and problems accessing medical care but the social aspect – which is so important for mental health – is much improved.
It’s always nice reflecting back on the latest PMRGCAuk Week knowing that we have helped more people to learn about various aspects of PMR and GCA. Knowledge not only helps people to manage their condition better but can also be extremely beneficial for enabling a patient to advocate for themself and to manage their expectations. E.g. Should their PMR really be gone inside two years?