One morning I couldn’t get out of bed
The symptoms appeared suddenly. One morning I couldn’t get out of bed. I had generalised acute pain. G.P. called and said I had Reactive Generalised Arthritis. I spent the next year taking anti-inflammatory drugs orally.
I read a booklet on PMR and demanded a blood test. Within 48 hours I was given oral steroids. I spent a year misdiagnosed and to date a further 2 years receiving correct treatment.
My initial concern was the suffering due to misdiagnosis by the GP.
My second concern is the lack of awareness of this long-term medical condition in the medical profession.
My third concern was coping with the condition.
I could find no information as to how much research was being done either nationally or in Scotland.
As I already have Dystonia, another long-term medical condition, I am having a challenging time.